The vast majority of care recipients are exclusively receiving unpaid care from a family member, friend, or neighbor. The rest receive a combination of family care and paid assistance, or exclusively paid formal care.
Whether you’re a paid home care provider, or rely on personal assistance to meet your daily needs, or a family member caring for a loved one, the nature of the working relationship depends on mutual respect and dignity. On this edition of Making Contact, we’ll explore the dynamic and complex relationship of care receiving and giving.
Featuring:
Camille Christian, home care provider and SEIU member; Brenda Jackson, home care provider and SEIU member; Patty Berne, co-founder and director, Sins Invalid; Jessica Lehman, executive director, San Francisco Senior and Disability Action; Kenzi Robi, president, San Francisco IHSS (In Home Supportive Services) Public Authority Governing Body; Rachel Stewart, is a queer disabled woman who is passionate about disability and employment issues; Alana Theriault, disability benefits counselor in Berkeley, California; Ingrid Tischer, director of development, Disability Rights Education & Defense Fund (DREDF); and Alta Mae Stevens, in-home caregiver.
Credits
Host: Laura Flynn
Producers: Laura Flynn, Monica Lopez, and Jasmin Lopez
Contributing Producers: Alice Wong and Stephanie Guyer-Stevens
Executive Director: Lisa Rudman
Web Editor: Kwan Booth
Photo Credits:
Alice Wong
Stephanie Guyer-Stevens
Music Credit:
Dexter Britain: The Time To Run (Finale)
Gillicuddy: Adventure, Darling
Steve Combs: March
Jason Shaw: Running Waters
Jared C. Balogh: BRICK BY BRICK DAY BY DAY
Jared C. Balogh: INCREMENTS TOWARDS SERENITY
Nheap: Crossings
Cherly KaCherly: The Hungry Garden
Trio Metrik: Vogelperspektive
Kevin MacLeod: Faster Does It
Resources:
UCSF: UCSF Study Projects Need for 2.5M More Long-Term Care Workers by 2030
SEIU: Longterm Care Workers
Disability Rights Education & Defense Fund
Disability Visibility Project
Hand in Hand: The Domestic Employers Network
National Disability Leadership Alliance
Senior and Disability Action
Sins Invalid
San Francisco In Home Supportive Services Public Authority
Family Caregiver Alliance
Segment Descriptions:
Choreography of Care
Community Storytelling Fellow, Alice Wong asks, how do people with disabilities who rely on personal assistance negotiate their relationships with the people that assist them? And how does that inform their sense of independence or interdependence with others? In this next story from the San Francisco Bay Area, Wong searches for answers.
http://www.prx.org/pieces/176039-choreography-of-care
A Lifetime of Caregiving: Mom and Uncle Harold
Most often family members are the ones that step up and provide care when a parent or loved one needs it. According to the Family Caregiver Alliance, 78 percent of care beneficiaries receive assistance from a family member, friend, or neighbor. Alta Mae Stevens is 87 years old. From the moment she married she’s been caring for one person or another. Her daughter Stephanie Guyer-Stevens talks to her about what a lifetime of caregiving has meant to her.
http://www.radioproject.org/sound/2016/MakingCon_160413_a_lifetime_of_caregiving.mp3
http://www.prx.org/pieces/176040-a-lifetime-of-caregiving-mom-and-uncle-harold